Wednesday, September 23, 2009

A new friend. a new inspiration: fighting inflammatory breast cancer

I had dinner last night with a woman who, according to all the statistics, should have been getting her meal through an IV at a Hospice center.
Instead, she was scooping up cheese and beef with tortilla chips from a platter shared with a friend at Cheeseburger in Paradise.
Ashley has inflammatory breast cancer, the deadliest of breast cancers and among the most deadly of all cancers.
She was diagnosed in May and, by then, it was already in her lungs, bones and liver.
She is married and has two children, a 3-year-old and a 7-year-old.
About the same time she was diagnosed, I'd had a scare.
A red circle, following the pattern of my veins on my breast, appeared out of nowhere.
My OB said that if it progressed any further at all, even the tiniest bit, he was sending me to an oncologist because it wasn't an infection and the only explanation he could find was inflammatory breast cancer.
The redness diminished with the help of Motrin and disappeared, thank God.
But in that short time, I'd done enough research to be scared when I met Ashely last night.
I'd learned that IBC generally appears as discoloration (red, pink, orange or general darkness) or irritation on the skin of the breast; spots that are warm top the touch; thickness of breast skin with an orange-peel-like texture; swelling of one breast; or nipple retraction. Sometimes, it's painful, but not always.
Most women simply figure it will go away.
By the time they see a doctor, it's too late.
"Stage doesn't matter with inflammatory breast cancer," Ashely said.
And it's true.
The disease spreads like wildfire. By the time symptoms appear, the cancer has spread so far that chances of survival are slim. About 40 percent of women with IBC survive five years, according to The American Cancer Society. That compares with 87 percent for all breast cancers combined.
Yet there she was.
Scooping cheese and beef with tortilla chips.
Laughing with friends, new and old.
Saved, so far, by research and awareness.
Ashely just finished round five of chemo. She has been drained of estrogen because this type of cancer feeds on it. She takes a drug that rebuilds her bone tissues as chemo destroys it. She will have her uterus and ovaries removed in a few weeks as a preventative measure.
A recent scan showed no discernible spots in her lungs. The masses in her liver and breasts had shrunk. They couldn't see the bone tissue because of the drug, but the doctors believe chemo is working on that too.
She's had a new scan on Wednesday and was still waiting for those results.
Ashley is living, and she is improving.
Against the odds.
October is Breast Cancer Awareness Month.
Ashely and another friend, my neighbor Kristy, persuaded me to demand an MRI instead of a mammogram this next time around because of my extensive family history of breast cancer (My grandmother died of it and my mother and sister are survivors) and because of the fact that, so far, I've had two scares.
After meeting Ashley, I've decided I will do that.
Like I said, October is Breast Cancer Awareness Month.
But why wait.
Even just a few days.
I am going to take charge.
How about you?


kristy said...

Lori you are fabulous! <3

Anonymous said...

Ashley is an inspiration for many of us. Thanks for seeing and sharing with others just how special she is! As a friend of Kristy and Ashley, I hope that we meet one day! Yes, take care of yourself!! Keep us posted! We care.

Karen (milfordmom) of

Inflammatory breast cancer said...

Diseases suffered Ashley also overwrite my best friend ... I just realized that the disease
Inflammatory breast cancer should be handled early physician before too late